AusDoCC has been honoured as recipients of the MARGARET SAHHAR GRANT, 2018 (p12). We apply for a lot of grants in a very competitive market and they are hard to get. This time we were grinning like Cheshire cats after submitting a successful application. This grant is currently being well used to put together some Disorder of the Corpus Callosum (DCC )resources. We have an 18 month project to build up a collection of resources to help professionals and families to support and understand DCC.

Progress to date:

  1. MEDICAL MANAGEMENT GUIDELINES: arranged according to life stages, outlining guidelines for professionals who engage with families and adults with a DCC. These are almost complete and will be available soon.
  2. SCHOOL INFORMATION PACK: This is being trialled this year and is available as a PDF and is also included as a hard copy in the member’s welcome pack.
  3. INFORMATION & TIPS SHEETS for parents, family and adults with a DCC, outlining some lived experiences. This is a collaborative project currently being undertaken by all committee members and the tip sheets are in first draft stage. They will be given a work over at the committee Face2Face meeting in October and available for feedback after that. (Please let us know if you would like to offer some feedback in November)
  4. ADULTS WITH A DCC: Some guidelines and information for adults with a DCC and the people they engage with. These have been workshopped at the May AusDoCC conference for adults with a DCC and are available for feedback. They will also be progressed at the Face2Face in October.
  5. INFOGRAPH: Our advisors have all been consulted to give some basic key information about corpus callosum disorders which will be combined to make an infograph. This information is currently being collected from all our advisors. ( https://www.ausdocc.org.au/about-ausdocc/meet-our-advisors/ )

All the resources will be uploaded to the website when complete. The website is also about to receive a minor makeover to make it easier to negotiate and include practical resources.

All this, thanks to Margaret Sahhar Grant, which has enabled us to do something that we have been itching to do for a very long time.