Connections 2025

AusDoCC is the peak national support group for all people diagnosed with a corpus callosum disorder (CCD) and their families, caregivers and professionals.

A CCD is a rare brain condition in which people are born without all or part of  the corpus callosum, the 250 million nerve fibres that form the communication pathway between the two hemispheres of the brain. A CCD causes a heterogeneous range of cognitive, physical and psychological impacts ranging from mild to severe. Examples of typically occurring impacts are slow processing, anxiety and difficulties with learning, memory, mobility, communication, social engagement, impulse control, mental health and executive function.

Professional knowledge is limited and CCDs are often inadequately recognised and undersupported. People in the CCD community typically struggle to gain access to and equity in social and economic participation. Research reports that people with CCD have significantly reduced personal wellbeing in all domains, particularly in relationships.

Connections 2025 is the only opportunity for children, adults, parents, carers and professionals in the CCD community to come together and meet others with professional and lived experience, who understand this disability and its impacts. Connections 2025 is the peak opportunity to engage in training, coaching and support, share knowledge, learn new skills and build supportive relationships with peers and professionals, specifically around disability impacts of a CCD. The event will equip everyone with a CCD to identify the best supports, meet goals and live more informed, better quality lives.

A CCD is a disconnection that connects us all.

 

Aims of Connections 2025

  • Increase social and community participation

  • Build skills to increase independence

  • Build participants’ relationship skills through a range of activities and opportunities to explore wider interests.

  • Reduce social and geographical isolation of individuals with a CCD, their parents and carers

  • Provide training in advocacy and leadership skills for individuals with CCD

  • Provide training for carers and parents to support their dependant’s unique needs.

  • Build capacity for our CCD community with targeted group and individual participation opportunities for social and community participation

  • Provide peer support activities to apply leadership skills

  • Provide accurate information about corpus callosum disorders and their disability impacts to improve knowledge and wellbeing for all members of the CCD community

  • Build safe, positive relationships in an inclusive environment

  • Increase skills and build capacity for independence and community participation for all with a CCD 

  • Deliver programs, informed by the latest research and best practices

  • Bring our socially and geographically isolated CCD community members together in a unique, safe, nurturing environment to enhance growth and development. 

Programs at Connections 2025

Relationships and friendship

Consent

Sexuality with disability

Managing a rare condition

Dealing with isolation

Communicating one to one

Communicating with peers

Parenting a child/adult with CCD

Education tips

Disability parenting hacks

Team building skills

How to be a peer leader

Surfing is for everyone

Walking in groups

Explore your natural surroundings

Get your dancing feet on

Games, games and more games – building confidence and teamwork

Getting active with pickle ball

Arts and crafts

 

NDIS Plan suggested line items (there will be others according to individual plans)

Ref: NDIS https://www.ndis.gov.au/providers/pricing-arrangements

04_210_0125_6_1 Community Social and Recreational Activities

This support item is designed to enable providers to claim reimbursement for the costs of enabling a participant to independently engage in community, social and recreational activities when costs of participation exceed an affordable level and without, the participant would be at risk of social isolation.  

 

09_008_0116_6_3 Innovative Community Participation

This support item is designed to enable providers to offer new and innovative services to participant and is for mainstream providers who want to enable participants to access mainstream activities.This support code refers to the cost of participating in a community activity.

 

09_011_0125_6_3 Community Participation Activities

This support item is designed to cover the costs of tuition fees, art classes, sports coaching and similar activities that build a participant’s skills and independence. This could include camps, classes, and vacation activities that have capacity building components. The support includes assistance to establish volunteer arrangements in the community, mentoring, peer support, and individual skill development. This includes attendance at a “camp" or group that builds a participant’s relationship skills and offer a range of activities and opportunities to explore wider interests.

15_038_0117_1_3 Training For Carers/Parents

Training for carers in matters related to caring for a person with disability.

Empowered carers lead to enriched lives for participants, fostering independence and enhancing overall quality of life.

 

*NOTE:
Please note that this information is general information only and all potential Connections 2025 participants should seek independent advice relevant to the structure of their individual NDIS plans and goals.