ABBY Harrison is full of beans, often in bouts of laughter and loves her Australian rules football.
But the five-year-old has an undeveloped Corpus Callosum – the band of nerve fibres joining the two hemispheres of the brain – which means she is unable to walk or talk.
Her parents, Niki and Steve Harrison, are hoping to raise $50,000 to bring international specialists to Australia to educate other parents and professionals about the condition.
“It would have been vital if something like this was around when Abby was little . . . it would have made my journey a whole lot easier,” Mrs Harrison said.
“I hope parents will feel a sense of belonging, knowledge and the opportunity to speak with other families.”
Mrs Harrison, who is a partner in a Narre Warren real estate agency, is a founder of the AusDocc organisation (Australian Disorders of the Corpus Callosum), which helps parents of children with Abby’s condition.
“It was an awful time for us – two doctors and three social workers told us to prepare to say goodbye to her,” she said.
“A couple of mums and I didn’t want another parent to go through what we went through alone, so that’s why we started AusDocc.”